What One Father's Letter Tells Us About Turning Eighteen
A Michigan father recently posted an open letter to the state's health leaders, elected officials, and autism advocacy organizations. I want to walk through what he actually said, because it names something this work keeps circling back to.
His son is nineteen and has profound autism. I'll call him Matthew here, the name used in the letter. After exhausting every safeguard available — door alarms, GPS tracking, constant supervision — this father made the hardest decision of his life and sought psychiatric hospitalization for his son, because Matthew had begun eloping into dangerous situations he had no awareness of.
Here is where it gets harder to read. During that hospitalization, Matthew's admission was repeatedly recorded as being for "aggression." It wasn't. He was admitted because of elopement risk. The aggression, when it happened, occurred during moments of fear and overwhelm — a response to distress, not the reason he was there. Separately, staff described Matthew's scripting — an ordinary, well-documented autistic communication behavior — as evidence of "a break from reality."
When a system cannot correctly read the behavior in front of it, the record that results isn't just inaccurate. It becomes the foundation for a treatment plan built around the wrong problem entirely.
Then came discharge. This father describes being told, essentially, to follow up with existing care staff. No coordinated transition. No crisis plan. No autism specialist brought in to help translate what had happened into what should happen next. Sent home to figure it out.
He names something else worth sitting with: the system that surrounded his son as a child — therapies, an IEP, coordinated pediatric care — mostly disappeared the moment he turned eighteen. Chronological age and developmental need are not the same thing. A birthday does not change what a person requires. But our systems are largely built around age, not need, and the support that exists for a five-year-old with profound autism is not waiting on the other side of that birthday for the nineteen-year-old he becomes.
Michigan was once a national leader here. The state's own history — which I'll return to in a future piece — includes a 1971 law mandating special education years before the federal government followed suit. That same state, in 2026, discharged a young man from a psychiatric crisis with nothing more than a name to call.
I don't have a tidy resolution to offer. What I have is a request: read this father's letter in full if you can find it. Sit with the specific claim that his son's crisis was misfiled under the wrong word, because the right word required someone in the room to actually understand autism. And ask, the way he is asking Michigan to ask: what would it look like to build the adult side of this system on need instead of age?